Brain Injury Awareness Month is now over, let’s take this time to reflect and look back over the things Alphabet Brains has done to raise brain injury awareness.
Let’s start with videos. I’ve started to Vlog on YouTube!
The first video is about The Brain Tumour Charity as March 3rd was #WearItOut, a day where you can buy or make a bandana or headband to raise brain tumour awareness! In this video I’m talking about my headbands and what they meant to me after my brain surgery.
The second video is about chronic fatigue, a common symptom after a brain injury. Especially after a traumatic brain injury (TBI) I talk about what the symptoms are, how it makes you feel and how to manage your life around it so it’s not so daunting! As well as advice for family and friends.
As this was my first video and I was so nervous because of that I also wrote about my headbands in a blog post (as I can write better than I can speak!)
I also shared a video on #WorldPoetryDay by Rupi Kaur:
i don’t know what living a balanced life feels like
when i am sad
i don’t cry i pour
when i am happy
i don’t smile i glow
when i am angry
i don’t yell i burn
It perfectly describes the sporadic emotions you feel after a brain injury!
A few other poems that are also fitting:
Shared brain injury survivor stories daily
A beautiful song by Radical Face – From The Mouth of an Injured Head
Once you’ve listened to the commentary it becomes even more beautiful:
‘I just thought the concept of the connections people make, persisting even through brain damage… I thought it was really pretty and it was something I wanted to write about’
The importance of wearing a helmet!
My boyfriend fell off his bike on 26th March. He has a few scrapes and has broken his collar bone, but we both agreed it’s better to have a broken collar bone than a broken skull/brain.
also comes in blue
Alphabet Brains business cards!
People always ask what I do, well Alphabet Brains is my full time job. I am so proud of this, but when strangers ask me what I do, I freeze… It’s such a personal thing to tell a stranger. I always feel like I’ve let myself and other brain injury survivors down when I don’t tell them about Alphabet Brains. Which is why I now have business cards, it takes the pressure off me and I don’t have to say much if I don’t want to. I can just hand them the card, because even though you have a brain injury, sometimes you don’t want to talk about it all the time, especially to complete strangers!
Plus it’s fun to leave them lying around for people to find and spontaneously become aware of brain injury.
Ongoing tweets about what chronic fatigue feels like
An amazing video by SBS Viceland:
‘How would you cope surviving a car accident only to be faced with the reality of living with a traumatic brain injury? We sat down with Dylan Czeladka, the 20-something who is doing just that.’
Let’s talk about mental health (Instagram)
Mental health comes along with having a brain injury… Becoming someone new after your brain injury takes its toll on you, trying to forget the person you used to be and enjoy the person you’ve become is not as easy as it sounds… It’s a constant struggle. I think tough days will always happen no matter how good you feel about yourself or your injury. It’s important to talk to move past the tough days/feelings. Saying something about how you feel is better than not saying anything. Whether it’s a private message, email or comment on here, a heart to heart conversation with your loved one or a meeting with your therapist, speaking helps. We are all in this together.
The Sad Ghost Club
We are all living new lives since our brain injuries. We have to keep moving forward, I know it’s tempting to look back and miss who you used to be… But we must keep moving forward to move past this feeling and enjoy the amazing brave people we’ve become. The Sad Ghost Club are right, ‘Keep going, you got this.’
Lots of things shared for brain injury awareness, I’m glad it was such a long month!
Last but not least I also shared daily photographs about Alphabet Brains and my brain injury through the Instagram challenge #MarchMeetTheMaker. A few of which included:
The reason I do Alphabet Brains
Brain injury/Brain surgery books
The raw life behind having a brain injury
Thank you for reading!